Contested Chronic Conditions: Archive of National conference 2017

Conference held in 2017, program archived in EVENT page - for the record.

Patient perspectives entail an experiential kind of situated and embodied knowledge.The importance and value of creating health care services centred on the patient perspective is increasingly recognised, and patient engagement is incorporated in many clinical and political initiatives. In the White Paper Meld. St. 26 (2014–2015) The primary health and care services of tomorrow – localised and integrated, the Government presents crucial steps towards this goal: “Future-oriented services take decisions in consultation with the users, are concerned about the users’ goals, needs and desires for their own lives, and use this as a basis for determining which services to provide and how they should be designed”.

In the Contested Chronic Conditions: Patients Perspectives conference we explored the role of Public and Patient Involvement (PPI) in health care service provision and discussed how such involvement might be achieved, particularly in relation to contested chronic conditions. The conference marked the ending of a research project funded by a grant from the Research Council of Norway. 

Consultations between health care workers and people with contested chronic conditions, often referred to as medically unexplained physical symptom (MUPS), are among the most challenging clinical encounters in contemporary Western societies. These encounters are often imbued in conflict between health care workers who report feeling inadequate and resentful in these consultations, and patients who describe experiences of being blamed, disbelieved and left without any adequate help or support. The main aim of the conference was to discuss the importance and value of the patient perspective in the context of contested chronic conditions and, hopefully, advance engagement between those who deliver health care services and those who receive them.

The conference took place at Sommarøya Arctic Hotel, located at the stunningly beautiful island of Sommarøya (55 minutes from Tromsø ariport by car). The hotel was voted "Norway’s Best Summer Hotel" by the readers of Reiser og Ferie and Nettavisen in 2010, and rated among the 25 best hotels in Norway on Tripadvisor in 2013. In 2014, MANN magazine named the hotel on a list of “50 places in the world you should visit before you die”.

Source of funding: The Norwegian Research Council

Scientific committee: Sarah Nettleton, Catherine Robson and Olaug S. Lian (head of team)

 

 

International speakers:

- Professor Christopher Dowrick, University of Liverpool, UK, and editor-in-chief of the journal Chronic Illness

- Professor Sue Ziebland, University of Oxford, UK

- Professor Sarah Nettleton, University of York, UK, and University of Tromsø

- Associate professor Pia Bülow, Jönköping University, Sweden

- Posdoc-researcher Catherine Robson, University of York, UK, and University of Tromsø