Hoda Hosseiny
Job description
I am a postdoctoral researcher at the Department of Clinical Medicine. My research interests lie at the intersection of medical law and ethics, disability law, law and psychiatry, human rights law, and emerging technologies.
I completed my PhD in human rights law/medical law at Lund University in Sweden, which I defended in May 2025. My doctoral thesis, entitled On Genuine Will and Genuine Self: A Critical Analysis of “Will and Preferences” Under the Convention on the Rights of Persons with Disabilities, critically examined patient autonomy in cases of treatment refusal and withdrawal under Article 12 of the Convention on the Rights of Persons with Disabilities. I challenged the assumption that autonomy is protected simply by giving legal effect to expressed "will and preferences," and argued instead for the importance of assessing their genuineness. I further argued that a patient's genuine will should be understood in relation to their genuine self or identity. In developing this argument, I explored the nuances of genuine will, critically examining whether, and to what extent, it entails disability. Drawing on relational autonomy, narrative identity, and ethics of care, I developed a decisional support model that emphasizes helping patients determine and develop their genuine will as part of the process of free and informed consent.
I work closely with Brita Elvevåg, Sandra Anna Just, and Lars Ailo Bongo, and during my fellowship I contribute to the ERC-funded DELTA-LANG project. My role is to examine the legal and ethical challenges raised by speech technologies used to predict relapse and psychosis in individuals experiencing mental health challenges.