In order to ensure your privacy, there are strict rules for how data can be compared and used, and permission/approval is required from the REK for each project. When researchers access the data, all personally identifiable features are removed and replaced by a random serial number (de-identification), which means that the researchers do not know the identity of the participants.
If you have participated in the study, you have the right of access to the data recorded about you. You are also entitled to correct any errors in the information we have recorded.
If you wish to withdraw from the study, you are entitled to have all personal samples and data removed, unless the information has already been used in an analysis or a scientific publication.
The data recorded about you is based on information from the questionnaire, measurements from your examination and blood tests. Following approval by the Norwegian Data Protection Authority and/or the REK, your SAMINOR data may be combined with data about you in other registers for the purpose of research. This additional data may include social security, illness, income, education, employment or information from other health surveys you have participated in. Possible registers are the Cancer Register, the Cause of Death Register, the National Population Register, the National Prescription Database, the Medical Birth Register, the Cardiovascular Disease Register, other national records of the diseases researched in SAMINOR, records in Statistics Norway and censuses. In all these cases, your name and ID number will be removed. Insurance companies or other commercial bodies will not be permitted to access the data. Data from SAMINOR 1 and SAMINOR 2 may also be linked.
Some results from the surveys are shared with the municipalities in the form of reports on their own data. These results can lead to promotion and prevention measures in public health and welfare in Northern Norway. The surveys will therefore enhance public health in the region. The SAMINOR Study can thus be a useful contribution to meeting the requirements of the Norwegian Public Health Act. The results, however, depend on the level of participation; the more people who participate, the more accurate will be the picture of public health in a particular municipality.